SPD

Monday, October 29, 2012

Appointments and Chemo and PICC lines! Oh My!

So today was a pretty busy day, as every other day seems to be lately. Not only did Sophia have her appointment at the hospital but so did I for baby #2, almost back to back appointments. I am one tired momma right about now!

Sophia has happily completed 2 phases of treatment and is well on her way to recovery. Our prayers are still for no complications along the way as this will set her back and prolong treatment. So far she's responded really well to everything. She began her last phase of treatment today and Lord willing that everything goes well she should finish in 2 years, approx. 22 months left. This last phase is broken down into several phases and right now she started intermaintenance phase 1 which consists of her only going to the hospital every 11 days for 2 months. I'm really happy we don't have to be going every week. So every 11 days we'll be at the hospital where she'll be receiving chemo. The difference this time is the chemo she use to get in the spinal tap (methotrexate) will now be given to her through her picc line, this may cause her to get mouth sores where getting it through the spinal tap wouldn't do that to her and it may also not happen, so we are praying this doesn't happen as I am sure it is pretty painful but every 11 days her chemo dosage will go up making the chances of her getting those sores greater. I believe once this phase is over (2 months) she should get her picc line out and then start her next phase which she would only be going in once a month and getting chemo through an IV line. This will hapen if all goes well with her picc line, or else she'd have to get a port which is an internal catheter. Her doctor likes to work with picc lines and I am glad becasue that means for a port to go internally she'd have to have a surgery to place it in and a seperate surgery for it to come out which would leave her with a scar but if it has to happen then it happens but I really dont mind the picc line and she doesn't either. She helps me clean it everyday and flush it. She's got this whole routine down and is becoming an expert at it :) I am also happy that she will not be on any new meds as of now so that makes the daily routine seem less then it used to be. I can't believe how far we've come, it seems forever right about now but we still got lots to go through. So for now we're on an 11 day hospital cycle and anxiously awaiting baby #2! God is so good, so good!
 
 Love Love Love her sweet little big smile here!
 
 

4 comments:

  1. She is so cute! I just want to squeeze her! :) Love you and so glad to hear everything continues well. Praise God. Will be praying for no mouth sores!

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  2. She loves you too! And yes prayers for no mouth sores are lovely :)

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  3. I was blessed to meet sweet little Sophia today! I continue to lift her up to our Lord for complete healing! May He carry her through this difficult trial, remove any and all discomfort, and make her whole! I pray for her mommy and daddy and for her little baby brother, Samuel, as he is gently and perfectly knit in his mommy's womb! May the Lord our God give them strength as they journey through this difficult trial! In Jesus name and in His Love, Amen. Blessings to you, Becky.

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  4. Becky, it was a pleasure to meet you :) thank you so much for taking the time to come out and celebrate with us. Sophia love loves her doll. She mimics the noises it makes and carries it everywhere :) Thank you for being a prayer warrior!

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