Maintenance

This year has been such a roller coaster already for our family,  we have finally been home for about 2 full weeks since this year has started. This year has been full of hospital stays and fevers, oh and in the middle of her hospital stay we moved. Thats a huge accomplishment so far and we are finally ready to rest. I've never been this tired in my life more than now. Our little Sophia is finally back to her silly energetic self. She's walking a whole lot better and even runs again and her hair is growing back nicely . Boy do I hate what this ugly cancer has done to our family. 

Another big thing is Sophia has made it to her last phase of treatment called Maintenance. 

Before I get to what this last phase involves I'll do a little update on how she's been doing. 

Since that last stretch of hospital visits she was admitted again fora couple of days due to an unexplained fever. Since then she has gotten a little sick and also had another fever but her body was able to fight it and we didn't have to take her in. Now that shes done with the heavy duty stuff  her body is a bit stronger and can fight off  infections on its own. She also had several doctor visits where she received chemo and a lumbar puncture. Yesterday she finished the phase she was on which had us going to the hospital every 11 days. This now allows her to move into what's called maintenance. This last phase lasts the longest. She will stay in this phase for the next year in a half to two years, that is Lord willing she doesn't relapse. She will only be going to clinic once a month. Once a month, not weekly, not biweekly, but monthly. Woohoo!!! Finally a little break in her and our life. I have our calendar full of days that are booked with nothing to do but relax. There's also a few surprises coming Sophia's way that she doesn't know about yet that we hope she'll love. I guess one sucky thing is that during this long phase she will still be on chemo but at home and she will go on steroids again. The nice thing about steroids is it makes her eat, so I'm hoping she will pick up her appetite a bit because it's been pretty poor since that last round of steroids. 

This 8 month long  journey with Leukemia hasn't been easy but our God has allowed this time to have gone fast and not allow much room for sadness. Also the power of prayer, good wishes, and support goes a long way. We have so many people fighting with Sophia and we couldn't be more thankful for them. I want to thank my parents (wifey's parents) without them we wouldn't have had the same journey we've been on. They have helped us many and plenty of times taking us to doctors appointments and just being there for us for whatever we need. They have helped so much with taking care of our son. He isn't allowed at the hospital when Sophia is admitted so we have had comfort in knowing he has been well taken care of by them and every time we take Sophia to her appointments they watch him. I'm so thankful that he is only 4 months old and doesn't know or understand what is going on. Gods timing is perfect in our lives and that's why continually trust him every step of the way. He has already laid this path out for us and we know that his ways aren't our ways and so we continue to walk blindly down this road to recovery having faith and knowing he is in total control. Here's to hoping, wishing, and praying that Sophia doesn't have to be admitted ever again and she can continue getting better and put cancer and leukemia behind her.